A newborn with Ondine's curse requires lifelong mechanical ventilation to breathe during sleep, as documented by his father in this 27-minute film.
Synopsis
A newborn with Ondine's curse requires lifelong mechanical ventilation to breathe during sleep, as documented by his father in this 27-minute film.
People
Synopsis
Tomasz Śliwiński films six months of life with his newborn son, Leo, diagnosed with Ondine's curse, a rare genetic disorder. Born with congenital central hypoventilation syndrome, Leo requires constant monitoring and assistance with breathing. Śliwiński, then a film student, captures the family's emotional challenges and daily routines as they adapt to this new reality. His wife, Magda Hueckel, a photographer, also shares in the experience. "Our Curse" runs for 27 minutes and was produced by Warszawska Szkoła Filmowa.
Deep Dive
Why Watch
- Meet Leo Hueckel-Śliwiński and his unique story.
- See the impact of Ondine's curse on a family.
- Follow Tomasz Śliwiński's personal therapy through film.
Did You Know
- Our Curse was nominated for an Academy Award in 2015.
- The film has a duration of 27 minutes.
- Tomasz Śliwiński was in film school when he started documenting his son.
- Leo has a rare genetic disorder called Ondine's curse.
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Frequently Asked Questions
What is Ondine's curse?
Ondine's curse is a rare genetic disorder that affects the automatic control of breathing.
Who directed the documentary Our Curse?
Our Curse was directed by Tomasz Śliwiński.
How long is the documentary Our Curse?
Our Curse has a duration of 27 minutes.
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