The Girl With No Bowel: Hermansky-Pudlak Syndrome
Synopsis
Karen, born with albinism and blindness, faces the challenges of Crohn's disease and a rare genetic disorder called Hermansky-Pudlak Syndrome.
Synopsis
Karen Tickle, born with albinism and blindness, faces significant health challenges, including Crohn's disease, which necessitates the removal of her lower intestine. Adapting to life with an ostomy bag, she initially experiences relief. However, years later, Karen receives a diagnosis of Hermansky-Pudlak Syndrome (HPS), a rare genetic disorder that also affects her cousin. The documentary features individuals navigating the complexities of misdiagnosed or undiagnosed illnesses, highlighting their struggles and the quest for accurate medical answers.
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