Documentary backdrop image for The 36-Year-Old Man Stuck In a Child's Body (Extreme Medical Documentary) (2021)

202148 minPGdocumentary

disability-inclusion life-stories

The 36-Year-Old Man Stuck In a Child's Body (Extreme Medical Documentary)

202148 minPGdocumentary

Jonny Kennedy, a man with Dystrophic Epidermolysis Bullosa, shares his extraordinary final months, including flying lessons and a visit to 10 Downing Street.

disability-inclusion life-stories

Genres

Channel: Absolute Documentaries

The 36-Year-Old Man Stuck In a Child's Body (Extreme Medical Documentary)

2021• 48 minPG

Synopsis

Jonny Kennedy, a man with Dystrophic Epidermolysis Bullosa, shares his extraordinary final months, including flying lessons and a visit to 10 Downing Street.

Synopsis

Jonny Kennedy, a 36-year-old man with Dystrophic Epidermolysis Bullosa (EB), faced a life where his skin would blister and fall off with the slightest touch. This documentary chronicles the final four months of his life, highlighting his remarkable spirit as he learns to fly, visits 10 Downing Street, and plans his own funeral. Through Jonny's experiences, the film sheds light on the challenges of living with a debilitating condition while celebrating resilience and the pursuit of joy in the face of adversity.

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