Two sisters, aged 18 and 16, face the challenges of Usher syndrome as they prepare for adulthood while their vision and hearing deteriorate.
Synopsis
Two sisters, aged 18 and 16, face the challenges of Usher syndrome as they prepare for adulthood while their vision and hearing deteriorate.
Synopsis
Lotte, 18, and Roos, 16, live with Usher syndrome, a condition that will soon leave them deaf and blind. Over two years, director Kim Smeekes captures their lives as they navigate the challenges of impending disability. Lotte pursues her passion for photography while Roos prepares for her final exams. Both sisters seek to experience life fully, including a shared dream of witnessing the Northern Lights. Their story unfolds against the backdrop of their daily struggles and aspirations.
Deep Dive
Why Watch
- Meet Lotte, an aspiring photographer with Usher syndrome.
- Follow Roos as she prepares for her final exams.
- Find out how the sisters plan to see the Northern Lights.
Did You Know
- Lotte is 18 years old and Roos is 16 years old.
- Both sisters have Usher syndrome, which affects their hearing and vision.
- The film was shot over a period of two years.
- Lotte is studying to become a photographer.
Perfect For
Frequently Asked Questions
What condition do Lotte and Roos have?
Lotte and Roos have Usher syndrome, which will lead to them becoming deaf and blind.
What are Lotte and Roos pursuing in their lives?
Lotte is studying to become a photographer, while Roos is passing her final exams.
What do Lotte and Roos want to see before they lose their sight?
They want to see the Northern Lights with their own eyes.
What are people saying?
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