Film Lens
The film follows Shelley and Rob Wall as they navigate the challenges of expecting their son Noah, who was diagnosed with severe spina bifida and hydrocephalus. The documentary captures their emotional journey from the initial joy of pregnancy to the devastating news revealed during a routine anomaly scan at 20 weeks. The couple learns that Noah's condition could lead to severe disabilities or even death shortly after birth.
As they receive care from Dr. Cla Nicholson, a consultant neurosurgeon in Newcastle, the Walls face difficult decisions, including multiple offers for termination. Despite the grim prognosis and the high mortality rate associated with severe hydrocephalus, they choose to give Noah a chance at life, preparing for both the possibility of his survival and the reality of planning a funeral.
Why Watch
- •Meet Shelley and Rob as they face a parent's worst nightmare.
- •Find out what happens during a routine 20-week scan.
- •See how a specialist neurosurgeon approaches Noah's care.
Did You Know
•Noah was diagnosed with severe hydrocephalus, causing his head to swell dangerously.
•The mortality rate for severe hydrocephalus is over 50%.
•Shelley and Rob were offered terminations five times during the pregnancy.
•Noah's condition included spina bifida, which can cause paralysis and brain damage.
Perfect For
Expectant parentsMedical professionalsAdvocates for disability rights